Lifestyle

I'm sure we've all dreamt to be richer, better financially off and debt free but sometimes things happen that can take that away from you at probably the least appropriate time. Myself for instance I was doing two part time jobs just to keep above water I was just getting myself back on track when I was hit with Charcot. Not knowing much about it I thought it wouldn't take that long to get better how wrong I was. Although I was in pain and discomfort I didn't think about the financial side but just 4 months into my treatment I noticed there isn't any financial help or support a losing battle. I'm currently receiving ESA (employment support allowance) which you can only have for 1 year except because I'm on a contribution allowance and not support I've got to start all over again in 6 weeks when I already know I'm going to be off work a lot longer. I also filled in a ridiculous form for PIA (used to be disability confusing i know) where every question was the same just written differently I may as well of banged my head against the wall (maybe the damage from that may of helped me get a claim) but its now been 15 weeks since. Somebody was suppose to come see me last week about my claim by Thursday Ive had no date or time so I rang them there response was someone forgot to ring me but can I get to Nottingham the next city over. I would love too! Put the kettle on and Ill just hop on the bus and ill be there (stupid) I'm in a wheelchair and have no one to take me at this short notice (oh they said whats actually wrong with you? me do you actually have my hospital notes which i know you've received!) well we have no one in your area for at least 2 weeks so still no money. I've worked ever since school only days I've had off are for shit diabetes I've paid my national insurance (although I had started using that way before I had started paying for it). And my tax a lot of people in the same condition seem to be having the same problem and I know a lot of them would quite happily go back to work if there's a job they can do with there condition.

Burden

I imagine any illness or disease is an a burden on anyone but I don't like being an a burden on everyone else family, friends ect it's my problem and ill sort it myself like I always have done. I don't want to be treated differently or to look different and I definitely don't want any sympathy. My illness  definitely feels like a burden with constant blood sugar checks, maths exams, funny looks. I've got over the part that I'm now stuck with this chronic disease but still not over the part with having to deal with it day in and day out. I'm not saying its the hardest illness to deal with but it's definitely not the easiest people just seem to think you watch what you eat and have an injection a few times a day. But it's much, much harder than that constantly keeping your blood sugars stable while battling normal life like rushed off your feet at work, running after naughty children its something most people don't have to think about (and your so lucky). After nearly ending up in hospital last weekend with DKA which I imagine is every diabetics nightmare the only way of getting through it with out being hospitalised is lots of fluids (sugar free obviously) lots of peeing (every friggin hour) and glucose checks every 2 hours and (yes that includes through the night). It's such a demanding illness you never get a break not even at Christmas. However  I like to deal with this on my own always have always will and yes I moan about it a lot I think I'm entitled to seeing as most people only have to moan about what to eat? Least you don't have to do a maths test with it too and if you get it wrong it fucks you up for the rest of the day. If I want any help ill ask just don't presume you can stick your nose in when ever you feel like it.