Emma's blog: Charcot continued

Emma's blog: Charcot continued: Update on the crappy thing that is charcot! I had my latest scan on Sunday to see how my fractures were doing results sometime this week in ...

Charcot continued

Update on the crappy thing that is charcot! I had my latest scan on Sunday to see how my fractures were doing results sometime this week in the mean time. I had an at home assessment from personal independent payment (PIP) I think? Anyway had to go through a form with her which I had already filled in (in June) but there computers were down so had to go through all these stupid questions again. I decided (in my head) to answer them sarcastically 1st question how do I get dressed? (I've got 50 pairs of clothes on just take one set off a day) 2nd question how do you get down the stairs? (I take my mattress off my bed and slide down great fun!) 3rd question how do you pull your trousers and pants down when you use the toilet? (I don't I just wee through them) 4th question how do you shower? (I wait for it to rain and ask my mum to dump me in the garden with my wheelchair, shampoo ect then she pushes me round the garden really fast to dry me) if only I could have answered the questions like that. But on a better note I did get my MRI results today my left foot isn't fully healed and need to continue doing what i am doing for a little while longer. My right heal is now fully healed and can start to weight bear on it with my air cast on and I know longer have to sleep with my right air cast on either :) (roll on bedtime) however I have my endo appointment tomorrow and I don't think that's going to go as well.

Emma's blog: Charcot part 3

Emma's blog: Charcot part 3: Well last Friday was my recent foot check up and it went very well despite the 3hr appointment time but they treat everybody's problems ...

Charcot part 3

Well last Friday was my recent foot check up and it went very well despite the 3hr appointment time but they treat everybody's problems for as long as there needed and that's why it's very time consuming. The waiting room was rammed as it usually is I don't know if its the same in every hospital but our foot clinic only runs two days a week and if there's an emergency people get shuffled (like I did so I don't moan). There are too many chairs in the waiting room as the majority of us are in wheelchairs I'm sure it would make more sense to remove some other wise you get dumped by the water fountain. Some wheelchair users really do need L plates not me I'm fantastic my nurse has already put me down for wheelchair rugby! But it's an option. I was called in by the chiropodist (not the nasty one she hurts) my feet were fine no heat and non swollen (smug) I have my scan next week and my doctor is very confident that its possible my air casts might eventually come off. She even booked me in to have my feet measured the same day yay! The doctor was lovely he measured my feet and I had to put my feet in this strange box that sank when I put my feet in very weird experience  . Then I got to pick my sexy new shoes (snort) those catalogues really do know justice and they should be here in 4 weeks. I have funny feet apparently my big toe is not flat from underneath to the end of my little toe. However he thinks I may only need special soles eventually so I can't complain and also my heel now clicks but let's see what the scan says first fingers crossed. Although I was having a conversation with my friend only last week that if my feet have crumbled I would rather amputate then surgery (theres been times when i wanted to hack it off myself its been that painful) and I would like one of those blade legs (do I get a discount on shoes if I only need one shoe or should I save it for someone who had the opposite leg off) my friend just laughed and said you've really thought about that haven't you my reply was yes.

Emma's blog: Lifestyle

Emma's blog: Lifestyle: I'm sure we've all dreamt to be richer, better financially off and debt free but sometimes things happen that can take that away fro...

Lifestyle

I'm sure we've all dreamt to be richer, better financially off and debt free but sometimes things happen that can take that away from you at probably the least appropriate time. Myself for instance I was doing two part time jobs just to keep above water I was just getting myself back on track when I was hit with Charcot. Not knowing much about it I thought it wouldn't take that long to get better how wrong I was. Although I was in pain and discomfort I didn't think about the financial side but just 4 months into my treatment I noticed there isn't any financial help or support a losing battle. I'm currently receiving ESA (employment support allowance) which you can only have for 1 year except because I'm on a contribution allowance and not support I've got to start all over again in 6 weeks when I already know I'm going to be off work a lot longer. I also filled in a ridiculous form for PIA (used to be disability confusing i know) where every question was the same just written differently I may as well of banged my head against the wall (maybe the damage from that may of helped me get a claim) but its now been 15 weeks since. Somebody was suppose to come see me last week about my claim by Thursday Ive had no date or time so I rang them there response was someone forgot to ring me but can I get to Nottingham the next city over. I would love too! Put the kettle on and Ill just hop on the bus and ill be there (stupid) I'm in a wheelchair and have no one to take me at this short notice (oh they said whats actually wrong with you? me do you actually have my hospital notes which i know you've received!) well we have no one in your area for at least 2 weeks so still no money. I've worked ever since school only days I've had off are for shit diabetes I've paid my national insurance (although I had started using that way before I had started paying for it). And my tax a lot of people in the same condition seem to be having the same problem and I know a lot of them would quite happily go back to work if there's a job they can do with there condition.

Emma's blog: Neuropathy

Emma's blog: Neuropathy: Diabetic complications are always at the front of my mind if things get really bad I would rather lose a leg then go blind. Now I have Charc...